Question 4 from https://autistics.life/@marionline/114262841963843028
4. How would you explain autism to someone who never heard about this?
Hm.
Hard question. Especially because not many people have actually NEVER heard of it. Everyone I know seems to at least believe they have an idea of what autism is. They know someone who has a child who is autistic or know someone who knows someone who's cousin is autistic and so on and so forth. That leads to many half-truths and stereotypes being shared around.
So, in a hypothetical world where that is not the case, what would I do?
I don't quite know.
I would probably start by saying it is a neurodevelopmental disorder. It encompasses a vast spectrum and every autistic individual faces individual challenges. Some people's support needs might be bigger than others and not all of them are easy to spot at first glance. Some autistic people might be able to hide their problems in public which does not mean that they do not need accommodations. There are commonalities between people on the spectrum which include:
A difference in how the brain interprets stimmuli, resulting in either hyper- or hyposensitivity in areas like sound, smell, pain etc. That also effects the inner world of autistic people, knowing and understanding their own feelings, boundaries and things like proprioception, hunger or the need to pee.
Most autistic people have a "spiky ability profile" meaning they have high skills or expertise in some areas while underperforming in others. Executive function is probably impacted by that. You should not assume a task is easy just because you find it easy.
Additionally, social interactions with autistic people can be confusing to non-autistic people because their behavior deviates from what is commonly referred to as "the norm". Autistic people are very capable of showing love and care, it might just look a bit different to what one might be used to.
This is like the basic framework I would like to work with when explaining autism to someone. I would go further to include things like meltdown, shutdowns, skill regression, masking, etc. I would probably talk for hours if they let me. But at the end of the day I can only truly speak about my own lived experience which taints my judgement.
The autistic spectrum is vast, i do not think I can encompass all the aspects it entails. Which just makes it that much more important for autistic communication, by voice, writing or otherwise, to be shared with the world.
We are all worthy of being heard.
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