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#lupus

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#FriendlyReminder la #piel es imperfecta. Tiene texturas. Poros, #acné, granitos, puntos negros, rojeces, escamitas, distintos tonos, manchas,... y según pasan los años ¡hasta líneas de expresión y arrugas!
#Filtros, la luz adecuada, skin cares y #maquillajes con mil paso y productos, clínicas estéticas desde muy jóvenes,... están distorsionando una imagen ya distorsionada hace años.
El #Lupus, #Sjögren, #Rosácea,... pueden poner a prueba la autoestima. Lo sé bien. Sé amable contigo. #SinFiltros

In February I joined my annual Make-A-Thing-A-Day group that gathers on FB. I bought supplies and spent the month playing around with Zentangle tiles, neurographic art, and a new set of watercolor magic markers (which are the bomb!). All low energy and very manageable.

With the new meds and the progress I'm making, I hope to make it back to the pottery by summer, but until then, I'm having fun!

#Zentangle #NeurographicArt #lupus #doodling #chronicillness @chronicillness

Now that it’s warmer, I’ve been able to get to the dojo with my husband and watch the tai chi class.

The last time I went was two weeks ago and I could only sit and watch. Tonight I totally surprised myself and was able to do the full Yang style 40 form before sitting down!

I’ve been on the new meds for three weeks now. Definitely less fatigue and more energy 🤞

A quiet day for me. It's rainy out, and I'm couch potato-ing it today. Starting two new powerful treatments for #lupus in the course of one week has thrown me a bit off center. I'm in the "loading" stage, so both treatments happen fast and furiously at first, but after this week of five shots, it's just one shot a week . Both treatments are injectable, one I inject myself, the second requires a doctor's visit.

I can't get the phrase "Inject-a-Jon" out of my head 😆

Continued thread

Since the 2021 #heatdome hit and I had to make effective window blocks that I could physically manage to install and remove on my own, as-needed, I have needed to deal with the #light issue.

I don't like artificial lights (some can even trigger #Lupus symptoms, ugh 😱) and running them adds to the heat inside my unit.

And yes, I've measured.

7/x

Most of you don't know me so I'll post this here.

I'm currently in such a state of limbo, due to circumstances lining up I am currently awaiting 4 results for assessments about my own body

1. Do I have ADHD
2. Am I Autistic
3. Do I have Fibromyalgia
4. Do I have Lupus

3 of these I may find out next week or get closer to finding out. But until then I'm in an agonising limbo and I'm not sure how to function.

Anyway just sharing.